Pulmonary Fibrosis Wales

Support Groups for PF

If you organise a support group in the UK please contact us as we would like to add a list on our website for patients.

Fundraising aims for 2012

To provide a forum for patients and carers.
To provide a informative booklet on PF/IPF.
To continue to raise funds to support research.
To be involved in setting up a patients support network for the UK.

Support Meetings

Our website was started in March 2010 after losing a member of our family with Idiopathic Pulmonary Fibrosis in December 2009. Whilst alive she courageously fought to get better care and support for all patients, address the lack of funding, raise the awareness and provide a support group.

Pulmonary Fibrosis Wales support group was started in March our intention was to create a warm friendly atmosphere where members are free to chat, support and give vital encouragement. It is a place for people to come together to share personal coping strategies, and most importantly a chance to make new friends.

  Most people who attend have been through or are going through something similiar and will have great experiences to share. We are a group that not only provides emotional support but we also invite outside agencies to provide you with information and strategies that are essential to help you deal with life's challenges. We know how lonely and isolating it can be, so why don't you join us.

Meetings held every first Tuesday of the month at Hilton Hotel, Newport 7.00pm. Check on our support meeting tab for the next dates.
The hotel is easy to get to, plenty of free parking and wheelchair access.
 If you feel you don't want to walk in on your own we can meet you in reception first.

 A kind dontation received in memory of the late Mr Selah Jenkins.

 A very kind donation has been given by Mr & Mrs C Hicks in memory of the late Mrs J Beeson.

 We wish to thank Mrs Cheryl Davies and family for their kind donations in loving memory of the late Graham Davies.